8.21.2015

To Live Like Aaron

Yesterday Gabe had his best cardiologist appointment to date.

I expected nothing less since the child is honest to goodness going at full speed from the time he wakes up (at 6:15 every. single. day.) to the time his little curls hit the pillow.  He runs and bikes and swims for hours on end and even when I convince him that watching a little TV would do him (e.i. me) some good, he still fidgets and wiggles and drums on everything in reach.

His ECHO results were fabulous and all his numbers were exactly where they needed to be.  His doctor, that I love, thinks that he's ready to come off another medication.  Music to my ears.

The doctor was so positive about it all, that I mustered up enough bravery to ask a question I haven't been ready to ask - What exactly does Gabe's future look like?

I know that he didn't want to answer me.

We'd just had this great, uplifting conversation and now I was asking for him to pop the bubble, give me a dose of reality.

He sighed and gave me the rundown:

The Fontan will work wonders through his teens.  We'll barely notice a difference between him and other kids.  He can't play Varsity sports, which will be a huge bummer to my sport loving boy, but he'll be alive so it's a fair trade.

In his 20's, we'll notice him slowing down, but with rest and medication modifications, he will be alive so again, a fair trade.

The 30's are when Gabe's outcome starts looking bleak.

Survival past 40, unlikely.

40.

Just a few years longer than my brother walked this Earth.

And as the doctor kept talking, about medical advances and stem cells and how long 35 years is in medical terms, I couldn't get that number out of my head.

I sent up a fervent prayer: "Please God let him blow that number out of the water."

But the prayer I offered up on the heels of those words is the true prayer of my heart.  And not just for Gabe, whose future is unclear, but for Josie and Andrew and myself and everyone that I love: "Let him live like Aaron."


Let him be cool without flaunting it.

Let him be accepting of all people, an instant friend to many.

Let him hold those he loves the closest.

Let him be funny and let his shoulders shake when he laughs.

Let him drive his beat up car across the country to go to concerts and ride the country's highest roller coasters and name weekend parties after himself.  Let him be brave enough to do all those things that I never did.

Let him find a love story that will inspire everyone that hears it.

Let him be funny and a bit sarcastic without being biting.

Let him find his art and his voice and, when the day comes that we know the end is near, let him decide to not go gently.  Let him decide he will live, and live well, every damn minute he gets.

Let him live like my big brother.

Let him be my hero, my inspiration.

Today I'm boarding a plane to fly up to Minnesota.

We are going to carry out Aaron's request to lay his ashes in the river where we grew up playing.

This weekend will be a different kind of hard.  My emotional stuntedness had me numb at his funeral.  More concerned about how everyone else was feeling than about my own heart breaking under my ribs.

But now, 9 months after he died, I feel it everyday.

There aren't many songs I can listen to that don't make me think of him, mostly because I know he'd hate them.  I hold my breath when it hurts and have to remind myself to exhale.  That it's OK.

I'm glad that I got to look up to Aaron for 32 years.  That he led the way.  I miss him every second.

And I want to live like him.


8.10.2015

First Day of School

It's here!

Third Grade:



And Kindergarten:


Our first real First Day of School.

It was adorable and nerve wracking and I cannot wait to go get them and hear all about their days!



And my favorite part: Last August to This August

 

  

8.07.2015

Where I Come To Terms With The Face I'm A Stage Mom

I nearly cried when Josie said she was done with ballet.

But I got it.  We had just moved across the country and everything in her little world was new and strange.  A new dance studio felt scary and she just didn't want any part of it.

And I am not a Stage Mom.

I won't project regrets of my childhood (e.i. no dance, no rhythm) onto my kids.

So we hung up the ballet slippers and packed up the recital costumes and that was that.

Until two weeks ago, during a dance sesh with Andrew, when Josie exclaimed, "I want to do dance again!"

And, y'all, I hit up Google to find a new studio so fast that I obviously am a Stage Mom who lives through her children.

We just barely made the deadline for a week long dance camp intensive where she got to try jazz, hiphop (please pick hiphop Josie), lyrical, tumbling & cheer, and ballet.

Yesterday we got to go in and watch them and I couldn't believe all the stuff they learned in 4 days.  They did four or five full dances and a cheer routine.  I was majorly impressed.  It was an excellent sales tactic since I beat a path right to registration to get her enrolled in a few classes.

This girl.






8.06.2015

Hibernation

We are in the final days of Summer

School starts in a week and I'm, like, in shock?  I feel like I've been in hibernation, just in the wrong season.

This Summer was a bit strange.  Like, it didn't totally feel like I thought it would, but I don't really know what I mean by that.  I think I was thinking of how Summer break felt when I was a kid and it doesn't feel the same now that I'm an adult.  You mean I still have to pay bills and go to the grocery store and clean my room?  Lame.

I spent a few minutes the other night lamenting over my poor children's lack of late nights and pool filled days that I had envisioned.  Then Andrew started rattling off all the super fun things they got to do and I realized it was just me having issues, not them.


Summer breaks in the Desert just aren't going to be quite like the ones of my Minnesota childhood.

All day swimming?

Playing outside from sun up to sun down?

Biking, climbing, being outside in general?

Those are going to have to be Fall Break activities.

Even though we had to find air conditioned ways to be footloose and fancy free, we still did up Summer right as evidenced by the photos below.  Tomorrow we go meet Gabe's Kindergarten teacher (hold me) and school kicks off Monday.

American Girl Cooking Class @ William Sonoma because, Scottsdale.

packing for her first big vacation without me.



Florida then Georgia with her Nana and Papa Curt. 
not pictured: me missing her like mad



One on one time with the baby while Josie was gone. 

So happy to have her home! 

 Straightened her hair.  Took an hour then she jumped in the neighbors pool and I cried.

Weekly dinners with Uncle Jay.  This week Cousin Pearl joined us. 

Car rides to 8000 dinners out. 

1/8000 dinners out. 

Even more ice cream.

"David Buster's"

tye dye sesh

swim, swim, swim
in one hour sessions then back to a/c

dance camp